Monday, March 31, 2014 - 14:23
I just counted how many days Karly was in the hospital since Feb. 28...a total of 21 days 15 which were in the ICU. This wasn't much fun from anyone's perspective especially a 19 yr. old. However, Karly was so happy to be able to participate in the Campus Crusade Beach Evangelism. This brings a smile to her face amidst a long, tedious fight for survival. Whenever you get a chance, please ask.

Karly was presented in a large cardiology meeting on March 20. Although there remains to be...
Wednesday, March 19, 2014 - 13:39
Since my last post on February 27, a lot has happened. On Feb. 28, she went for a test called Lower Extremity Arterial Doppler(by the way that was normal). After lying down 30 minutes for the test, she sat up to leave and noticed that it was difficult to tie her shoes, walking to the car, etc. She took a couple breathing treatments at home with no improvement. We called our NIH doctor describing the symptoms, and she sent us to the ER. In the ER, she was put on oxygen, and eventually a CT was...
Thursday, February 27, 2014 - 13:00
Since the last update on Karly a few things have happened. We went to IU Health to see a Vascular Interventional Radiologist. We really like him, and he instantly seemed bonded to our story. He said to consider him a part of our team. What a blessing! He believes she has something rare called Mid-Aortic Syndrome. Even if this is not the correct terminology, we are in pursuit of finding out more of what is happening in her body. She has several arteries and vessels that are severe to critical in...
Wednesday, February 26, 2014 - 17:20
It's very hard for me to believe that it's been 3 years since Kelsey passed away. I still remember it like yesterday. The girls think it seems forever ago. What different perspectives. Recently I had them write an essay. The theme was, "Do not sorrow, for the joy of the Lord is your strength." It allowed them to reflect. I loved reading their thoughts.They talked about why it is important to be filled with the joy that we receive through Christ saying, "Living in joy is to our benefit; it...
Thursday, January 30, 2014 - 10:05
We just returned home from NIH Tuesday evening. She had the endoscopy done Monday; Praise God; it looks better. This means she will not have to take more drugs to get the GI system better. She will still have a risk of internal bleeding, but it is now reduced. It is good enough that she can now move forward to getting both renal arteries stented. This has not been totally confirmed, just the majority consensus. The creatinine is hanging out, and hasn't increased since January 1. Pray it stays...
Saturday, January 18, 2014 - 12:09
Saturday, January 18, 2014 - 12:04
I'm am so sorry to leave you all in the dark. I was thinking that maybe it was just more of the same for you to keep hearing about. BUT, Karly has to deal with this everyday, and the prayers of the saints are needed. I went back to where I had left off. She was having difficulty getting IV's in every three weeks, so finally she had a port placed last summer. This is been a source of great relief. The timing of course was awesome resulting in its need to perform so often. She has needed IV...
Saturday, August 3, 2013 - 10:39
I keep trying to find the words to write, but I'm finding myself at a loss for words. The lyrics from
"Word Of God Speak" keep coming to mind.

I'm finding myself at a loss for words
And the funny thing is it's okay
The last thing I need is to be heard
But to hear what You would say
Word of God speak
Would You pour down like rain
Washing my eyes to see
Your majesty
To be still and know
That You're in this place
Friday, January 25, 2013 - 21:18
  • Be The Match occurring February 9, 2013
    11:00 am – 6:00 pm
    Normandy United Methodist Church...
Monday, January 21, 2013 - 09:13
Just an update...her last 2 visits to NIH have been a bit on the rough side because she hasn't found a nurse on the adult floor that is as capable as the one she had for years on the pediatric floor. Her IV's haven't gone well, getting meds in has been extremely slow which causes other things to be difficult. This past visit was better, and she may have found "HER" new nurse. She is reserving judgement until her visit next week. She has needed iron the past 2 visits because she has been so...