kjkblog

Saturday, September 20, 2014 - 15:04
Clinic Day. Her labs are about the same, so I guess that is good. The CR is still running high, but seems to just be hanging out there. Her BP and heart rate have been a little higher for some reason. Her skin GVHD is manageable and tolerable. All in all, things are still going well. Karly and Zach enjoyed a very awesome time with a group from the Inn on the Young Adult Night Out(YANO). They went to Top Golf Alexandria. All I know was they seemed really happy went they got back to the house. I...
Saturday, September 20, 2014 - 14:57
Tuesday, September 16, 2014 - 20:56
Nice weekend! Sunday we walked to the Farmer's Market with the one of the house managers and another house guest. We purchased some yummy sweet corn which we ate tonight(awesomely good), nectarines, and a beefy red tomato for momma. We also ate lunch together, and I thoroughly enjoyed a gyro pita sandwich. It was a beautiful day.

Monday was clinic day. All labs pretty much stayed the same. While we would love to see these numbers come down, we were very thankful they didn't rise....
Sunday, September 14, 2014 - 07:40
Thursday, September 11, 2014 - 19:08
Wednesday, September 10, 2014 - 19:07
Wow. Time seems to be flying by once we hit outpatient. We barely have enough time to get things done. Of course, we have had Sara here since Saturday. She leaves tomorrow morning. We have enjoyed her company and her distractions. We have started learning some local ways to get around downtown like the Perimeter Shuttle and Bethesda Circulator. We rode the shuttle to dinner at the Inn on Monday. It went well. I rode the Circulator to Giant Tuesday to get groceries to make a meal Karly had been...
Friday, September 5, 2014 - 13:34
God is Good All The Time comes to my mind right now. Not just because things are going well, but I mean all the time.
Karly was discharged yesterday, and we moved into the Woodmont House which is sorta like the Children's Inn, but just...
Tuesday, September 2, 2014 - 14:05
Sorry for the delay in posting. We were at my sister's all weekend having fun. The family arrived around 1pm on Friday. We enjoyed the hugs, smooches, and smiling faces.






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Thursday, August 28, 2014 - 19:55
Results are back from biopsy; nothing much to report which is good news. Her abdominal pain is better. I really think it was related to one of the drugs she had to take for a month. Her last dose was Sunday night, and the pain has been okay for 2 days. She has lost 15 lbs, so beefing her up is on the agenda. If all continues to go well overnight, her PICC line will be pulled tomorrow. She still has her trusty port, well she has 2 ports, but the one in her head is only for tapping and...
Tuesday, August 26, 2014 - 10:05

Yesterday was okay. She wanted to go back to the Inn where it was more peaceful and restful. Hoping we will be outpatient soon. Her abdominal pain seems to be worse. It is hard to say exactly. She has been experiencing it for weeks, but when she was on the Dilaudid 24/7, it likely masked some things. Plus she wasn't eating as much, plus she wasn't taking everything by mouth. All these things can muck up sorting it out. This is when they put their heads together and start figuring out the...

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