kjkblog

Monday, October 20, 2014 - 14:12
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Wednesday, October 15, 2014 - 10:45
Weekend was awesome. Went to Gilley's on Saturday. We saw an interesting rendition of Godspell and enjoyed a yummy dinner. Sunday, we went to the movies and ate Uncle Ridge's famous grilled pork chops. Monday, we...
Saturday, October 11, 2014 - 08:29
In exactly 3 weeks, we hit the 100 day mark! We were nervous about going forward with this transplant, but also knew without a doubt that it was God's timing to proceed. All we could do was trust in Him, keep our eyes and mind on Him, and let Him do all that is perfect and pleasing to Him. People often ask themselves "why me"? A friend I met out here who has survived multiple cancers and is now caring for her 25 yr old daughter in the midst of cancer from her deadly immune disease who is...
Monday, October 6, 2014 - 14:24
Labs are a little out of whack today, but love that the BP is normal. Her CR hit another new high today. Her sodium and phosphorus are high. We will have to hold the lasix this week to see what the CR will do. Pray her BP doesn't rise as a result. We hope to get some answers later this week after the MRA of the Brain and Renal Arteries are performed. She had a couple weird blister-like lesions on her hands this weekend. The first one was resolving, then another one cropped up on a different...
Monday, October 6, 2014 - 14:12
Friday, October 3, 2014 - 14:39
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Saturday, September 27, 2014 - 09:55
Lab numbers are still stable. CR(creatinine) has come down to an acceptable high. BP and HR still running higher than we like. Her tacrolimus was a little low, so had to increase dosage. She has periodic problems with kaleidoscope vision, sometimes with other symptoms like hearing cicadas, feeling lightheaded, tingly fingers, and numb hands. It doesn't usually last long. She had a several spell of this in early June which lasted 3 hours. The more recent times have been short-lived like 10-30...
Monday, September 22, 2014 - 17:21
Another stable report today. Her CR was a little lower than last week, so it is trending in the correct direction. Her BP(blood pressure) and HR(heart rate) are running a little higher than we like meaning her heart is working harder. All other numbers are where they would expect them to be. She slathered SPF 50 over her arms, legs, hands, and feet before going outside this weekend. The result: Skin GVHD didn't flare! This was good news. We hope that we have found a way to better tolerate this...
Saturday, September 20, 2014 - 15:43
Saturday, September 20, 2014 - 15:08
We finally had our first Spanish lesson. Now we have homework. Friday afternoon we were all reading books, and Karly and Zach fell asleep. I love Friday nights at the house when we get together and eat. Since we are the only family at the house right now, we skipped the games and went out to a restaurant for dinner...one of Zach's favorite....mexican. It was super fun to get to know the manager better, and the food was yummy!

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